And away we go!

Today I am off for my one year post treatment appointment with the Radiation Oncologist....hoping this one goes as well as the one with the regular oncologist went.

Finally got the insurance stuff figured out and even got a refund on my prescriptions..

This weekend I get to celebrate the 2nd birthday of my sweet little Andrew...he was born 2 months before my diagnosis and having my little "bald buddy' to snuggle with during my treatment was the best and having him sit in my hospital bed during a visit that included his sister the amazing Abbelicous and Mom Betsy was the best medicine ever!

So lucky to have friends that share their kids with me!

xoxoxo

Frustration level is at its highest point in a long time.

So I went to get prescriptions this weekend and was told my Medicaid was telling them to ask for a primary... well since I only have that I was confused. I paid for them because I had to have them and came home....in my mailbox was a package from Prestige Health plans..I get so much solicitation for insurance and was kind of busy so I did not really open it. I then got a call yesterday from my radiation oncologist office telling me they were not on my new plan (what new plan?!?!?!). Apparently I was switched to another plan from MediPass.

Now this normally would not cause me much concern..however..NONE of my doctors are on this new plan..NONE!!!! So I spent an hour on the phone this morning getting all of this straightened out (in tears mind you) and now the changes do not become active until June 1....so if I need to go to the doctor this month I have to jump through all kind of hoops to get an approval.

Then I had to call the pharmacy and give them the info, they are nice enough to issue me a refund... CVS ROCKS....but sheesh....what a way to freak me out. I have been waiting three months for my surgery next month and the scare of possibly having to start all over with new docs was just enough to put me over the edge.

I am having so much fluid retention on my right side that it is making my clothes fit weirdly and causing discomfort on my hip and knee on that side...I just want to feel comfortable in ,my own body again..I hope I will soon.

Sorry for the grumpy post, but I am so beyond frustrated and just because "active treatment" is complete people think everything is fine and dandy.. and while in some ways it is.. there is so much more to deal with that people have no idea about.

Thanks for checking on me and I promise to shake this grouchiness and get back to my positivity by the time I post again.

xoxox

One year post treatment

So on Wednesday I had my one year post treatment check-up with my oncologist, on May 14 I have the same appointment with my radiation oncologist. At this point I should have been able to go to one year check-ups with the oncologist, but I have some swelling at the base of my neck on the right side (which is the side they took the lymph nodes from under my arm) so I have to go back in 6 months. Nothing tumor feeling just some swelling. I have been working more than usual recently and have had the stomach flu twice to it could just be related to fatigue.

Since I have appointments with the radiation oncologist, my pre-op for surgery, surgery and a mammogram in the next 3 months he felt enough people would be poking at me that 6 months was a good check point.

Moral of the story is.. cancer does not end when treatment does..that is for sure.

Thanks for checking in, I will try to update a little more frequently.

xoxox